You wouldn't know it from my blog, but several weeks back I attended the Joint Decisions Empowerment Summit sponsored and paid for by Janssen Biotech in Boston. (Life has been busy!) It was a great time of sharing stories with other bloggers. Yay! I finally got to meet Wren from Rheumablog, Amanda from All Flared Up and Carla from Carla's Corner in person after following them for years! Meeting bloggers in person is still a weird experience because you come face to face with someone for the first time knowing so much about each other. I was also happy to meet some new blogging friends: From This Point. Forward , Spoonless Momma, and Titanium Triathlete , Amazing women! Of course it was also nice to once again see The Hurt Blogger, Rheumatoid Arthritis Guy, Inflamed: Living with Rheumatoid Arthritis, and Getting Closer to Myself. I was surrounded by strong people with a purpose in life.
represented where we are today. I brought pink Post-its. For me, they represent that I'm in a good place with my RA right now and I am able to do many things which is represented by all the Post-its I use.
Sunday started earlier with breakfast, video interviews, and more energizer breaks. We then gave feedback on Joint Decisions, a collaboration of Janssen and Creaky Joints to provide patient information via teleconferences. Finally, we concluded with group photos and then headed to the American College of Rheumatology Conference. I then headed back to the hotel, met up with my husband, and went to dinner before heading to the airport for a delayed flight.
Overall, I felt everyone on the Biotech/Tonic team was there to listen to our needs and make us comfortable. I appreciate that they gave us plenty of time with the team but also time to explore Boston. It was a great experience. I left feeling like I'd made a small contribution towards advocating for all of us.