Stepping in line for admission, spirits were high. You could feel the need to be energized and motivated - ready to make positive change in the world. Bernie did not disappoint.
As Bernie hit on various alarming topics, he always ended with "Now here is the good news." I am smiling now just visualizing him speaking those words. As I sat absorbing the positive vibes around me, it made me think of my journey with rheumatoid arthritis (RA).
The last 14 years of living with a chronic illness have been filled with lots of bad news. My personality is one that desperately needs to find the good news and let that be the focus. This is probably one of the reasons I am drawn to Bernie Sanders. He has a special way of reminding his followers that we all have a role to play in making good news a reality. Here's how I see my bad and good news with RA.
Bad news: There have been mornings that I feared I wouldn't be able to get out of bed and care for my kids.
Good news: I did get up. I wasn't always able to do the things I wanted to, but my children turned out pretty amazing, despite living with a mom who lives with a chronic illness.
Bad news: I have slightly wonky fingers and multiple nodules that often make me feel more monster than human.
Good news: The nodules in my feet, fingers, elbows, and shoulder have not prevented me from doing any of the things I have wanted to do in life.
Bad news: I have to take medications that potentially have very harsh side-effects.
Good news: So far, I have not experienced any of those side effects. In fact, despite taking an immune suppressant medication, I rarely get sick with a cold or flu. Plus, with my current medication mix, my hair has grown back in fully.
Bad news: RA often affects more than just our joints and I will always need to be aware of my lifestyle choices so that I am living as healthy as I can.
Good news: Because of my RA, I was forced to learn about better food choices, stress reduction, and living in the moment. Plus, RA has helped me focus more on my individual strengths and work on improving my weaknesses.
Bad news: When living with a chronic illness, it is easy to feel alone, as if we are the only one to experience that pain that is now a big part of our lives.
Good news: Communities of people continue to grow. Support is out there in blogs, organizations, advocacy work, and one of my favorites, HealtheVoices, which brings together people of a variety of health conditions to learn and share with one another.
Bad news: Despite my RA being in a good place, I constantly have to monitor my fatigue. One day of doing too much can wipe me out for days.
Good news: After years of struggling, the fact that my RA is in a good place is absolutely amazing.
I left Wednesday night feeling in touch with myself. I needed to hear good news - it's what keeps me going. Bernie reminded me that no matter what is happening in my life, good news is always up to me. I have the potential to change the bad to good.
*I realize that not everyone is a Bernie supporter and that's okay. My goal here is to share the effect he had on me and my desire to always find the good within the bad.
Every time I read one of your posts, I feel like I've gotten a hug. Sending you one.
ReplyDeleteThanks Carla! I got it!
DeleteI am with you Cathy. I am so upset by current events, and so hopeful for the future.
ReplyDeleteNow it is a little different with RA, I am feeling pretty good, but remain concerned for our grandchildren and turning 60 this year makes that inevitable time when I will not keep going seem closer.
I think all in all I feel we are close with t1 diabetes and we are gettign closer with RA. So yeah I might still be here when I can worry about other things and how they might impact our grandchildren.
I keep trying to remind myself to focus on what is going right in our world right now and not the constant bad. There is a lot of good, it is just being smothered by the bad.
DeleteI'm so glad I found you, just the few pages I've read has helped me, I'm a 35 year diabetic insulin dependant, I've had neck fusions, 4 back surgeries within 4 months, ended up with a severe Steph infection, I've battles breast cancer, lost my baby brother, 3 months to the day I lost my mother, and 5 days before I lost my mother, I was diagnosed with RA, I'm raising my 12 year old granddaughter, I've had her since birth, and some days I feel so guilty, cause I can't do all that she wants to do. Thank you for your blog site.
ReplyDeleteSherry, I am so glad you are finding my blog helpful. That makes me happy. You have definitely been through a lot. I hope you read my post about raising my kids. It is natural to feel guilty that you can't do all they want, as with your granddaughter, but remember that you are still doing a lot of amazing things with her and for her. Hang in there. It sounds like you have a big heart that only wants to do your best.
Delete